You can ask me on one day.. how are you going and I will reply with all smiles "Good".
But in the back of my head I have been thinking, Did Cooper have his medication today? Shoud I be concerned about his attitude at blending in and striving to 'NOT' be different than his peers?
have we done his exercises properly and often enough? Is his flexibility remaining the same or is he starting to decline? Question after question after question!
But that's a parent's demand in dealing with Duchenne!
But I do have to share this with all my friends and family.
Please note the link to the blog below is intended to be an honest and real account of what life is like as time goes on...
This blog was written by a good friend Sharyn who's son also has Duchenne. It was intended for people to read and learn about the realistic side of this disease.
We are so lucky to have the supportive family and friends that we have.
Sharyn's blog entry is titled:
Duchenne Without The Sugar Coating
It is not Cooper's Life now but will be in the future.
On a brighter note...
I will be attending the Duchenne Foundation Conference: Riding the Wave from October 4th -6th on the Gold Coast! So I hope to learn as much as possible while there!
Hope to post more soon!
Donna xxx
On a brighter note...
I will be attending the Duchenne Foundation Conference: Riding the Wave from October 4th -6th on the Gold Coast! So I hope to learn as much as possible while there!
Hope to post more soon!
Donna xxx
Always in our thoughts. Has been an eye-opener for myself and family especially the grandchildren are learning and talking about their cousin, (Cooper, son of Donna and Matthew Anderton) and his illness and hope for him to be better..xx
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